Jake & Ben, 47 days old
Update/Ben: We have had a few setbacks this week with Benny. Poor little guy can’t catch a break! As I mentioned, he was suppose to come home Saturday but they delayed his homecoming due to some bradycardia spells. He continues to have them and the doctors are perplexed as to why he is still having them. At this point, he really should be outgrowing them but he still is very small and breathing is directly related to muscle mass and fat. Yesterday, he had an echocardiogram to see if there is something wrong with his heart that is causing these breathing spells. Fortunately, the eco. results came back just fine. Nothing seems to be wrong with Ben. He is eating wonderfully, gaining weight, and maintaining his temperature. They are hoping he just needs a little more time. They want him to go at least 24 hours without a bradycardia spell before he goes home. They are going to do another test to see if sending him home on oxygen would help him with his spells. This breaks our heart that he would still have be hooked up to these machines, but hopefully it would only be for a short period of time.
I often wonder if Ben is having a hard time because of the separation. He was ready to go out the door until Jake left. Ever since Jake has been gone, Ben seems to be having these spells again. My doctor was telling me that studies have been done on co-bedding twins and how they often do a lot better when they are together. Hopefully, once Ben gets home and he is back with Jake, he will start thriving again.
Update/Jake: Oh Jake…my little gassy guy!! We spent Sunday night in the emergency room because we thought he was having breathing difficulties. His breathing seemed very labored. He was grunting, groaning, and holding his breathing on and off for 7 hours. It really made us quite nervous and my parents kept telling us he’s just constipated and that these are normal baby sounds…but we wanted to get things checked out for our own piece of mind. Well my parents were right…the diagnosis came back as a severe case of gas and constipation. Yea…we went to the emergency room at 3:00 a.m. for indigestion. I guess being first time parents, you have to learn the hard way. Thank goodness he is ok!
Update/Us: We are a little stressed out over Ben’s current issue. We were so close to being done with the NICU part of this journey. We see it as a minor setback but still worry that something else might be going on with Ben. My gut feeling tells me he is ok and just needs a little more growing time. When we first took the boys off of the cannula, Ben was in the three pound range and Jake was in the five pound range…Ben was still so little. I think it was too soon for him. Again, hopefully time will be the best medicine.
Life with Jake home is great. He is currently cuddled up on my chest as I type on my laptop. Other then his gas issues, he is such a content little guy. I don’t know if it is a preemie thing, but he doesn’t cry much at all. He seems very content.
As I mentioned before, we are living at my parent’s house till our house is ready. At first, we were stressed about not being in our house when the boys came home but I truly believe this is a part of God’s master plan. It has been so nice being at my parent’s house and having the extra help. After the emergency room debacle, my mom let us sleep for five hours straight while she watched Jake. It was so nice. It has also helped having our parents watch Jake while we go back and forth to see Ben.
I know we have already asked for so many prayers…but could you say one more for Ben? I know he is a fighter and will ultimately be just fine. We just have to be patient.
Thank you for your prayers!
Danielle & Kevin
PS) Jake is 6 pounds and Ben is 4 pound 5 ounces.